In a wheelchair in a nursing home, a woman in the last stages of a metastatic malignant breast tumor was asked what she needed for her 75th birthday. “Life” was her answer.
Aging and developing chronic medical health problems is a natural process. Unfortunately, some individuals have it harder than others and develop terminal illnesses that take a drastic toll on their health and those looking after them. In such situations, the best that close friends and family members can do is make the patient’s remaining time as pleasant and manageable as possible. The appropriate solution to turn to is good hospice or end-of-life care.
What are the ideal practices for end-of-life care?
You may have heard the terms ‘palliative care.’ Suppose you have a friend or relative who has a terminal illness or is dying. In that case, palliative care aims to relieve suffering and handle problems while treating an actual illness such as cancer. The primary objective of end-of-life care is to ensure patients experience an acceptable level of comfort, personal satisfaction, and medical assistance.
Palliative care can help people who are no longer receiving treatment or whose illness is nearing death. It helps identify end-of-life care needs and facilitates trained caregivers and family members to meet all patients’ needs. It can take place at home, in nursing homes, and hospice care facilities. The palliative care team can help you set treatment goals and make crucial decisions.
Your loved one may lose the ability to speak, sit, walk, and eat. Daily tasks such as washing, grooming, dressing, and turning require full assistance from a caregiver. Your companion, the hospice team, or a caregiver with a terminal degree in nursing recommended by your doctor, can help you with these tasks. To ease the suffering, consider these ideal practices while providing end-of-life care to a loved one.
Talk to them and listen to what they have to say
Patients who know that their life is coming to an end may contemplate their beliefs, self-worth, or the purpose of their life. They may have questions about how they will be remembered or think of apologies or forgiveness from others. If the patient needs to talk about perplexing issues, you can speak and ask open or closed questions. If you’re not much of a talker, just lend an ear and listen as they unburden. Alternatively, you can also read books together, play music, or bring up very personal qualities of the patient.
Provide emotional support
Battling terminal illness and end-of-life situations can be emotionally exhausting for the experiencing them. If you are there, you can offer emotional support. Your presence nearby, sitting quietly, or holding hands can be comforting and reassuring. You can also make arrangements for other loved ones to visit and extend their support. However, to keep the patient’s comfort in consideration and ensure that you plan visits accordingly. That way, you’ll avoid too many people showing up at one time.
Creating a quiet environment with soft lighting and gentle music to remove distractions can improve the person’s mood, stimulate memories and help a person relax.
Most terminal patients do not wish to make their caregivers uncomfortable. However, the truth is that there is only so much that you can do to provide comfort to someone in their final days. Given the situation, every bit counts. Consider the following tips:
- While feeding, give a small spoonful of food. Cook meals enriched with essential oils and nutrients to ensure they’re eating healthy. It would be best to consult a doctor before meal prep to avoid giving them something that’s off the plate.
- Dab the face with a slightly damp town to reduce dryness around the eyes. Apply medical-grade cosmetics to keep the appearance fresh and lively.
- To facilitate breathing, gently turn the patient’s head, change the pillow or raise the head of the bed. Use a humidifier with a cool mist.
- Apply ointments carefully on dry skin to reduce irritation.
- Learn how to move and reposition people in bed to avoid injury.
- Learn how to change sanitary pads, adult diapers, or insert a catheter to avoid discomfort while removing body waste.
- Speak gently and reassuringly. Hold the patient’s hand or touch her/him gently and frequently ask if they need anything.
- Use painkillers recommended by a doctor/professional caregiver only.
- Observe whether the person is hot or cold. Change room temperature and bedding if necessary.
Consider respite care
It’s no easy feat to look after a patient in an end-of-life state; it takes a lot of patience, understanding, and nerve. The patient probably has many medical dispositions that require professional attention. You must be tolerant and composed enough to deal with that. However, there are alternatives to conventional caregiving options that can prove to be quite beneficial.
Respite care aspires to provide relief for you and your family from the difficulties associated with end-of-life care. Respite care offers a unique opportunity for a mental break and recreation for everyone involved in the process. Not only is this method effective in providing comfort, but it serves as an excellent break from the otherwise gloomy atmosphere in traditional caregiving facilities. A hospice volunteer may spend a few hours meeting the patient to check on their health, or the patient may visit the hospice office close-by to the retreat.
Providing terminal care to a loved one can be emotionally and physically exhausting. The ideal way to go about it is by providing emotional support and comfort to your loved one. Support them, talk to them, and help them out with routine tasks such as eating and cleaning. Consider on-boarding a trained professional to ensure that you do not falter along the way.
Additionally, it would be wise to keep a watch on your own physical and mental health. You will be unable to look after your loved one if you cannot cope with the fatigue and stress that accompanies taking care of someone in their final moments. Don’t forget to love yourself in the process.